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Conference 2016 Recap

The LDSF 2016 Conference (June 24 to 26 in Baltimore, MD, USA) was a smashing success. A time for learning about the latest research on LDS, connecting with other families and patients, and thinking about the potential of what we can do together as a Foundation to improve the lives of those living with LDS.

The Conference in numbers:

  • 223 participants
  • 85 families
  • 63 youth
  • 16 medical expert presenters
  • 6 countries

Conference Sessions

See the full agenda

The general sessions were recorded and are available on our YouTube page.

LDSF Conference 2016 Videos

Heart of Gold

rory 2

Pictured: Rory & Indiana Feek w/ LDS Patients*

During Conference, the LDSF presented our "Heart of Gold" award to Joey + Rory who, while facing an almost unimaginable personal tragedy worked to spread awareness of Loeys-Dietz syndrome and the foundation to a national stage on a scale that is staggering. We are humbled and grateful for their Hearts of Gold in furthering the mission of the LDSF. Congratulations and thank you to Joey + Rory!

*Photo courtesy Kate Jurgens


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