Why attend conference? To hear from the Loeys Dietz Syndrome experts in the fields of cardiology, vascular surgery, orthopedics, genetic disease associated with food allergies, gastroenterology, endocrinology, craniofacial and dentistry, maternal-fetal medicine and genetics, pain and fatigue management, emergency room care, nutrition, stress management and rehabilitation therapies.
Meet The Sterling Family
My amazing wife Courtney, myself, and our two young sons- Perry age 4.5 and Preston age 2.5 are new to the LDS family. Our two little champs and myself were diagnosed with Type 4, and the constant and consistent rounds of visits to doctors has honestly been difficult mentally and physically for the Sterling crew. But with the support and friendship of Gretchen, Dr. Dietz. and the extended Hopkins and NIH families, we feel empowered with knowledge and bolstered by recent LDS findings that allow our kids to be kids, and dad to be dad. The saga began in 2008 with dad's aortic valve replacement and insertion of St. Jude's mechanical valve, with question marks behind the diagnosis and need for surgery, until 2016, when tests on Perry and Preston finally shed light. Our little fighters consider doctor visits playtime and look forward to the trinkets of entertainment in the waiting rooms! The 2016 conference was equal parts peace of mind, group therapy, and venting! I was the first to sprint to the front the room to ask the presenters questions specific to my family's situation, and was always greeted with patient ears and eyes. Since then, we've gotten to know other members of the LDS family well and can personally attest to the sheer power of support and kind words.
To tell the truth, I never really believed in the concept of silver lining, but I like to tell others that we're powering through and when you have those that care about you clearing the path, you can jointly blaze a trail!
Andrew, Courtney, Perry and Preston Sterling