The Loeys-Dietz Syndrome Foundation has developed various resources to support the LDS community.
Resources
Fact Sheets
There is still much to be learned about LDS. These fact sheets, created in collaboration with the National Marfan Foundation (NMF), provide a quick and concise resource of helpful information.
How To Find Out If You Have Loeys-Dietz Syndrome
Is It Loeys-Dietz Syndrome or Marfan Syndrome?
Glossary
The medical terminology associated with a condition such as Loeys-Dietz syndrome can be confusing and overwhelming. The LDSF had developed a glossary to help define terms you may come across in your LDS journey.
School Packet
As a parent of an LDS child, knowing how to communicate with your child's school can be challenging. Find a sample letter, emergency information and school-specific facts in this PDF packet to help open the lines of communication between you and your child's educational institution.
Conference Presentations
Video presentations by medical professionals presented at the June 2012, LDSF conference in Baltimore, MD can be viewed on the LDSF YouTube channel.
Video presentations by medical professionals presented at the June 25, 2010, LDSF conference in Baltimore, MD can be viewed here:
Dr. Pamela & Anthony Guerrerio Presentations
Dr. Paul Sponseller Presentation
Questions and Answers from medical presentations at the June 25, 2010, LDSF conference in Baltimore, MD. Topics include: genetics, cardiac surgery, allergies and gastroenterology, orthopedic surgery and vascular surgery.
Peter Donato, a teen with LDS discusses his experience at the Living Successfully Panel at the 2010 National Marfan Foundation Conference in Houston, Texas.
LDSF - Connections
People are starting to take notice of some of the things we do and people we impact. Read more about others with LDS and their journey or connect with us on Facebook.
Read the story of a family and their journey with LDS at the Mayo Clinic.
Follow us on Facebook.
Matters of Heart - Newsletter
Our newsletter is designed to keep the members of our community informed and up-to-date on the happenings of the LDSF.