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20 Years of Awareness
 

Conference

 

The Marfan Foundation, in association with Children’s Healthcare of Atlanta and Emory Healthcare, will host an in-person conference July 10-13, 2025 that provides people living with Marfan syndrome, Loeys-Dietz syndrome (LDS), Vascular Ehlers-Danlos syndrome (VEDS), Stickler syndrome, and related conditions, and their families an opportunity to learn about these conditions from the country’s medical experts, hear about the latest research, learn ways to improve their quality of life, and connect with other people who are on the same medical journey. 

Specialized programs and workshops are offered for children (ages 5-12), teens (ages 13-18), and adults, ensuring that each age group enjoys a tailored Conference experience.  

In addition, a free Health Fair is available for those who lack healthcare coverage or cannot access expert medical care near their home. This unique offering allows Health Fair attendees to meet with members of the Foundation’s professional advisory board and medical experts from the host institutions to discuss diagnosis and treatment.  

Scholarships are available to help make attendance possible for those facing financial hardship. 

All programming is in English, and translation services are not available. However, two workshop sessions will be offered in Spanish on Saturday.

Conference Location:

Hyatt Regency Atlanta
265 Peachtree Road NE
Atlanta, GA 30303

 
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Past Conferences

 

2022: 37th Annual Marfan Conference in Newport Beach, California

Thank you to everyone who joined joined us in Newport Beach, California for The Marfan Foundation’s Annual E3 Conference! July 7-10, 2022 was a great weekend for our entire genetic aortic conditions community.

Heart of Gold Award

Pictured: Chicagoland Kasper and Padilla families

Pictured: Chicagoland Kasper and Padilla families

During Conference, the LDSF presented our "Heart of Gold" award to the Kasper family (Mike, Nikki, Amelia and Cash). They are instrumental in all the success of Chicagoland’s local initiatives for fundraising and community, heart-warming in their dedication to community and awareness through their annual tree-decoration campaign, and inspiring in their philanthropic giving to support Dr. Dietz’s LDS research initiatives at Johns Hopkins.  We are humbled and grateful for their Hearts of Gold in furthering the mission of the LDSF. Congratulations and thank you to the Kasper family!