Fundraising

Take heart. Help raise funds for education, research, and support initiatives for the Loeys-Dietz Syndrome Foundation.

By gathering family and friends who want to help make a difference, participating in fundraising events increases support for the Loeys-Dietz Syndrome Foundation, as well as builds awareness about Loeys-Dietz syndrome. The Loeys-Dietz Syndrome Foundation is a division of The Marfan Foundation. Through this relationship, donations to the Loeys-Dietz Syndrome Foundation are tax-deductible and directly support our mission. You will receive a donation receipt from The Marfan Foundation.

 
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Legacy Donations

  • Celebrate life’s milestones

  • Honor an individual

  • In memory of a loved one

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Recurring Donor Program

Partner with the LDSF by creating a monthly or quarterly financial gift. The simplicity of setting up automatic and recurring giving helps the Foundation to create a sustainable revenue stream.

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Walk for Victory

Whether we walk together in person or virtually around our own neighborhoods, we walk to bring awareness and support to the LDSF mission. See where we’ll be next and join Team LDSF (or create your own team) at Marfan.org/Walk.

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Event Fundraising

Loeys-Dietz syndrome members have undertaken a wide variety of events from bowling nights to happy hours to bake sales and potlucks. There’s no end to the opportunities and creativity!

If you’re hosting and would like to share it with our community on social media and newsletters, just let us know! Send us an email us at info@loeysdietz.org.

 

Begin Your Legacy With Us

To help you get started on your plans and legacy, you can use FreeWill, an online tool that guides you through creating your will or trust. It’s easy to use, accessible online, and can be completed in 20 minutes. You can use our resources on their own or use them to document your wishes before finalizing your plans with an attorney.

 

Donor Advised Funds

Did you know you can support the Marfan Foundation with your Donor Advised Fund right from our website with just a few clicks? The Foundation works with Crescendo to help you easily make gifts from your Donor Advised Fund. If you have questions, reach out to Deborah Goodman (dgoodman@marfan.org)

 
 

Set Up a Facebook Fundraiser

  1. Visit facebook.com/fund/TheMarfanFoundation

  2. Edit the title of your fundraiser to let everyone know you are raising money for The Loeys-Dietz Syndrome Foundation, a division of The Marfan Foundation. This is critical!

  3. There is wording about The Marfan Foundation already entered. You can change this and personalize it so your family and friends know why the Loeys-Dietz Syndrome Foundation is meaningful for you.

  4. Select a picture to use for your fundraiser. Click here to download an image we’ve made for you!

  5. Share the link to the fundraiser on your Facebook page, tell your friends about how the cause, and watch the donations come in!

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Add a Donation Sticker to Instagram Stories

  1. In Instagram, open the camera or upload a photo that best highlights of your cause (here’s a link to one we made for you!)

  2. Tap the sticker icon.

  3. Select the donation sticker from the tray.

  4. Search for and select The Marfan Foundation.

  5. Customize the “Fundraiser Title” to include LDSF or Loeys-Dietz Syndrome so we can track your donations.

  6. Add some pizazz to your image using GIF, Music, Location, or Hashtag stickers. Make sure you tag us so we can reshare your Story.

  7. Tap Send to to publish!