Sydney’s mom, Barbara, remembers clearly how the support from her family, friends, and community got them through these challenging times. The family was grateful for the incredible generosity of their community, but Sydney and her sister, Carly, realized right away that not everyone is as fortunate as they are.

That’s when the Sydney Lerman Hospitality Program was born.

Sydney and Carly want to let families who have a child or young adult in the hospital know that they are not alone even if they don’t have a support network, the Loeys-Dietz Syndrome Foundation and the greater Marfan family is there for them. The Sydney Lerman Hospitality Program will provide a customized care package filled with goodies from coloring books and board games to local restaurant gift cards and other basic essentials to help them stay positive.

This year, we put smiles on the faces of kids all over the country who were having surgery because of Marfan or a related condition. Seth, from Florida… Natalaya, from Ohio … Kierra, from North Carolina … Madison, from Connecticut …. Kelly, from New York are just a few of the kids we sent cheer, with everything from stuffed animals, toys, crafts, and Ipads to scrumptious treats for the whole family to enjoy. We even included gift cards for some families to help with travel to and from the hospital. Many of the families had traveled out of state to leading medical institutions to get the best care for their kids.

For them, this support from their Marfan and related conditions community was extra special. 

If you know your child or a young adult will be hospitalized soon, please complete our questionnaire with them.  You can complete it online here or at the link below. Once you submit the completed questionnaire, Sydney, Carly, and other volunteers will create your customized basket and send it to you.