Make a difference in the lives of people with Loeys-Dietz syndrome
We can help you find meaningful ways for you to make a difference and help people with Loeys-Dietz syndrome live their best life.
Walk for Victory
Whether we walk together in person or virtually around our own neighborhoods, we walk to bring awareness and support to the LDSF mission.
Give Financially
Only through your donations can we create a brighter future for the thousands of children and families living with Loeys-Dietz syndrome. We offer options for becoming a member, making a memorial or honorarium gift, and more.
Connect with Community
The Loeys-Dietz Syndrome Foundation holds events of all types in various locations throughout the country and online. From Annual Conference to regional symposiums and virtual support groups – there’s something for everyone!
Fundraising
From bake sales and lemonade stands to garage sales and fundraisers at your school or office, we’re here to offer encouragement and help you get started.
Volunteer
Volunteering for the Loeys-Dietz Syndrome Foundation enables you to give back to the community and help create a brighter future for everyone living with LDS.
Participate in a Study
A research study is a way that scientists and doctors find answers to difficult scientific or health questions that identify better ways to diagnose, treat, or cure a disease.
The Marfan Foundation Annual Conference
Every year, we hold an annual conference which provides people living with Marfan syndrome and related conditions, and their families, an opportunity to learn from the country’s medical experts, hear about the latest research, and connect with other people who are on the same medical journey.
Camp Victory
Now, children with Marfan and related conditions can have a camp experience in an environment that is safe for them. It also enables them to create connections with other kids who are just like them and form meaningful bonds that can last a lifetime.
Shop
Every purchase supports The Marfan Foundation and its divisions for Loeys-Dietz syndrome and VEDS.
Special Events
The Marfan Foundation hosts many fundraising events from coast to coast throughout the year to raise awareness of Loeys-Dietz syndrome and to raise critical funds to support our work. Our events include formal Heartworks Galas, family-friendly Walks for Victory, online cocktail hours, and local events arranged by volunteer leaders. Each and every event is important and helps us further our mission.
