Mental Health

Mental health refers to psychological, emotional, and social well-being. While most people with chronic conditions focus on their physical health, mental health is often ignored. Our body and mind are interconnected, therefore, it’s important to take care of both. Having a connective tissue condition isn’t easy, so give your mind the TLC it needs.

Together with the Marfan Foundation we have a collection useful mental health resources, including a Help and Resource Center, Virtual Support Groups, and so much more.

Are you experiencing a crisis? Dial 988 for Suicide Hotline in the U.S. or visit Lifeline (988lifeline.org). Outside the U.S. visit International Suicide Resources.

 

Upcoming Virtual Support Groups

Events
LDS International Connect Support Group
Nov 25
LDS International Connect Support Group

The LDS International Connect is a support group for any person living with Loeys-Dietz Syndrome, as well as parents and caregivers of people with Loeys-Dietz Syndrome. This group is intended for community members living outside of the United States. It is conducted in English. The LDS International Connect meets on the 4th Monday of each month at 2 pm EST.

Kids Club (Rescheduled)
Nov 26
Kids Club (Rescheduled)

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.

(Rescheduled) Conexiones: Estamos juntos (impartido en español)
Nov 27
(Rescheduled) Conexiones: Estamos juntos (impartido en español)

Conexiones: Grupo de apoyo virtual para establecer conexiones con otras personas que tienen condiciones del tejido conectivo. (impartido en español). Una vez al mes.

Presentado por Kathleen Bolton del Centro de Ayuda y Recursos, fundación Marfan

El grupo se reúne el tercer miércoles de cada mes de 7:30 a 8:30 p.m., hora del este.

Support for Young Adults with Marfan, VEDS, LDS and related conditions
Dec 4
Support for Young Adults with Marfan, VEDS, LDS and related conditions

Have you been diagnosed with Marfan syndrome, VEDS, Loeys-Dietz syndrome or another related condition? Are you between the ages of 18 and 30?  Would you like to connect with others in your age group? If so, this support group is for you.

Marfan and Related Conditions Connect
Dec 5
Marfan and Related Conditions Connect
Pain Management Group (Rescheduled)
Dec 5
Pain Management Group (Rescheduled)

This support group is for people with Loeys-Dietz syndrome or a related conditions who are interested in exploring various ways to deal with pain.

A Time to Talk: Monday Matters!
Dec 9
A Time to Talk: Monday Matters!

Join others in our connective tissue condition communities to share concerns and discuss issues related to everyday life. You will feel supported, heard, and enjoy the time spent with others.

Coping with Grief and Loss
Dec 10
Coping with Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful. If you have lost a loved one to Marfan syndrome or a related disorder and would like to connect with others who know what you are going through, please sign up for this group.