Emergency Preparedness

 

Note: If you are currently experiencing an emergency or crisis, you should contact your doctor, call 911, or go to the nearest emergency room.

Emergencies can happen. Be ready.

Living with Loeys-Dietz syndrome or any related genetic aortic condition means that emergency medical providers may need life-saving information about your condition in order to accurately treat you in an emergency.

It also means that family, friends, and caregivers should have quick, clear, and easy access to medical information that help them guide your care, should you need their assistance.

 

Emergency Preparedness Kit

This kit is your tool to help you be prepared in the event of an emergency. We suggest putting the completed packet in a brightly colored envelope or folder so it is easy to find. At home, keep it near the door so it is handy for Emergency Medical Services (EMS) and perhaps tack it up on the wall at work. Also provide a copy of this packet to your Power of Attorney and Healthcare Proxy. Portable USB drives can hold all this information and can be carried on a key chain. Some medical alert services have these drives available with their logo or you can purchase them in any office supply store.

Many people put emergency contact information in their cell phone filed under ICE (In Case of Emergency). Use ICE1, ICE2 and so on. EMS people are trained to look for this on your cell phone.

 

Emergency Alert Card

The First Source of Information for First Responders.

We hope this tool will help patients/families to always have on hand a source of information regarding Loeys-Dietz syndrome, as well as their personal medical information. If that information is used by first responders in an emergency, or just as a quick reference at a doctor's appointment; we think this could be a very valuable addition to your wallet, purse, or pocket. 

If you have any questions about this resource, feel free to contact us at info@loeysdietz.org

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