This panel presentation will dig practical ways you can get the most out of your doctor visits. We will look at what you can prepare ahead of time and ways you can advocate for yourself during a visit, among other steps you can take to make sure you get the most out of each visit.
Members of the Marfan, LDS, and VEDS community will share personal experiences, with medical professional advise from Gretchen MacCarrick, MS, CGC, Genetic Counselor in the Department of Genetic Medicine at Johns Hopkins University.
You will receive a zoom link via email after registering.