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Annual Conference


Join us for Our 36th Annual Conference!

Online Everywhere July 8-11, 2021

The Marfan Foundation is pleased to announce that registration is now open for our first-ever Virtual Annual Conference, July 8-11, 2021. Based on the input of our volunteer leaders, the emphasis of this year’s conference is on more increased interaction and more opportunities to meet other people.

The four-day event offers innovative ways to reconnect with old friends and make new ones through condition discussions, social events, and open virtual spaces to hang-out and share. The medical sessions on Marfan, Loeys-Dietz, VEDS, and Sticklers will, as always, feature leading experts in the field and will allow for robust question and answer exchanges. There is no cost to register.

Many sessions will have links to related content that participants can watch or read to supplement the information from the session. In some cases, it is strongly recommended that participants watch previously recorded content prior to the session (pre-requisites). In other cases, the resources listed can be viewed or read at any time.

For our international community members, the conference offers sessions on aortic surgery in Italian, French, German, and Spanish, as well as virtual meet-ups in each of these languages. In addition, several sessions will be translated live into Spanish.

Sessions will be available from morning till evening Eastern time, with several support groups offered more than once so that they are accessible to people in different time zones. Some medical presentations will be recorded; support and social gatherings will not be recorded. The complete program will be available soon.

We recommend viewing the conference sessions on a desktop, laptop, or tablet, though they can also be viewed on a smartphone. Internet access is required.

Looking forward to “seeing” you this summer!

Click here to learn more >


OPPORTUNITY FOR DOCTORS: Dr. Reed Pyeritz and Ms. Jane Tumpson Marfan Conference Physician Travel Scholarship available. Learn more and apply here.


If you have any questions, please contact us at staff@marfan.org.

Later Event: July 8
Grief and Loss Group