Help Spread Loeys-Dietz Syndrome Awareness on Social Media!

Facebook

1. If you have a Facebook profile, make sure you “like” the Loeys-Dietz Syndrome Foundation page at https://www.facebook.com/loeysdietz so that our posts appear in your news feed.

2. Comment and share our posts, pictures, and videos, especially during Loeys-Dietz Syndrome Awareness Month.

3. Create your own Facebook posts with links to LoeysDietz.org to educate your personal networks about Loeys-Dietz syndrome. Use our hashtag #LoeysDietz in all your posts for easy tracking. Tell your story, explain why Loeys-Dietz syndrome (LDS) awareness is important to you, and promote the facts. Encourage your Facebook friends to share your posts to multiply your impact.

4. Post photos and share what you’re doing for LDS Awareness Month on our Facebook page.

5. If you are not on Facebook, now is a good time to join! Create a profile (for free) on facebook.com. Then “friend” people you know (friends, relatives, neighbors) to create your personal network before June begins. Then, when you post about LDS awareness, you will be sharing information with a large, and growing, group of people.

Twitter

1. If you have a Twitter handle, make sure you follow us @LDSFoundation.

2. Watch for our tweets, like them, and retweet them to your followers.

3. Create your own tweets about Loeys-Dietz syndrome to educate your followers. Use our hashtag #LoeysDietz in all your tweets for easy tracking. Tell your story, explain why Loeys-Dietz awareness is important to you, and promote facts. Encourage your followers to retweet your tweets to multiply your impact.

4. If you are not on Twitter, now is a good time to join! Create your twitter account (for free) on twitter.com. Then follow people you know and who you want to influence. There’s a good chance that people you follow will then follow you back. That’s the power of Twitter. Then, when you tweet about Loeys-Dietz awareness, you will be sharing information with a large, and growing, group of people who will, hopefully, retweet your news to their followers.

• Loeys-Dietz syndrome isn’t always inherited. Sometimes it can come from a spontaneous mutation. Go to loeysdietz.org to learn more. #loeysdietz

• Parents don’t always pass on the Loeys-Dietz syndrome gene variant to their children. Learn more about why at loeysdietz.org. #loeysdietz

• It’s really all about the genes when it comes to Loeys-Dietz syndrome. Find out more about the gene variant at loeysdietz.org. #loeysdietz

• Because Loeys-Dietz syndrome affects connective tissue, it can affect what activities and exercises someone with LDS can do. Learn more at loeysdietz.org. #loeysdietz

• Loeys-Dietz syndrome can really affect the entire body since connective tissue is found throughout the body. Learn how by going to loeysdietz.org. #loeysdietz

• Just like no two people are the same, no two Loeys-Dietz syndromes are the same. Read stories about people’s different experiences with LDS by going to loeysdietz.org. #loeysdietz

• Did you know that there are conditions related to Loeys-Dietz syndrome? Learn about them by going to loeysdietz.org. #loeysdietz

• These are just the unique characteristics of Loeys-Dietz syndrome. Find out about other characteristics by going to loeysdietz.org. #loeysdietz

• Loeys-Dietz syndrome can affect the body in so many ways. Go to loeysdietz.org to learn more. #loeysdietz

• Hypermobility is one of the reasons why some people with Loeys-Dietz syndrome have to limit their activities. Learn more at loeysdietz.org. #loeysdietz

• Aneurysms can happen at anytime and anywhere in people with Loeys-Dietz syndrome. Find out more at loeysdietz.org. #loeysdietz

• You can sometimes see the signs of Loeys-Dietz syndrome in the eyes. Learn why that is at loeysdietz.org. #loeysdietz

• Want to walk in the footsteps of someone with Loeys-Dietz syndrome? Then learn about their feet at loeysdietz.org. #loeysdietz