New Director Announced for Loeys-Dietz Syndrome Foundation

Stacey Watson has been selected by The Marfan Foundation to join its team as Director of the Loeys-Dietz Syndrome Foundation, a division of The Marfan Foundation. Stacey is also a member of the Loey-Dietz community.

Stacey comes to the Foundation having spent more than a decade in non-profit management, including experience as an Assistant Camp Director as well as in program development, support groups, strategic planning, and development.

“As we continue our journey to make a meaningful impact for the Loeys-Dietz community, we are pleased to welcome Stacey as the new director,” said Michael Weamer, President & CEO, of The Marfan Foundation. “With her expertise in community outreach and advocacy, combined with her first-hand knowledge and experiences with the condition, Stacey will play a pivotal role in advancing the mission of the Loeys-Dietz Syndrome Foundation and guide its continued success.”

“I am honored to have been chosen to lead the Loeys-Dietz Syndrome Foundation. This role is deeply personal,” Stacey said. “Living with Loeys-Dietz gives me a perspective that is shared with this community, and I am committed to leveraging that insight to drive positive change, raise awareness, and improve the lives of all those affected.”

Stacey is a proud alumna of Syracuse University and earned her MSW, specializing in Management and Community Organizing with a concentration in Families and Children, from the University of Maryland. Stacey lives in Kensington, MD, with her husband, Andrew, and their two children.

To reach out to Stacey, please email her at swatson@marfan.org.