Loeys-Dietz syndrome (LDS) is a genetic disorder that affects the connective tissue in the body. The disorder was first observed and described by Dr. Bart Loeys and Dr. Hal Dietz at the Johns Hopkins University School of Medicine in 2005.
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“I was at work, and I got the call from the nurse practitioner at the surgeon’s office to say, you know…we got the results, and…you do have Loeys-Dietz,” he recalled. George, at just 45 years old, had several diagnoses, catching the attention of his physician. During the appointment, George could tell providers were suspicious that larger medical issues were in play.
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Started in 1992, the Foundation’s Help & Resource Center reaches more than 5,000 people around the world via our websites, emails, and one-on-one phone calls. Our registered nurses, Director Stephanie Amdur-Clark, MSN, RN, NP, and Janice Petrella Lynch, MSN, RN, answer a variety of medical questions from the community. Help Center Manager Kathleen Bolton offers Spanish-language services to our community. The team put together the most common questions they receive at the Help & Resource Center and their answers.
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In this two-minute video, Dr. Kim Eagle talks about the three things he wishes every emergency department caregiver knew about aortic emergencies. Please share with the healthcare providers in your life!
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New guidelines for the diagnosis and management of aortic disease were published yesterday in the Journal of the American College of Cardiology and Circulation. These guidelines, which were created by a team of medical experts on behalf of the American College of Cardiology and American Heart Association, provide recommendations on the diagnosis, evaluation, medical therapy, endovascular and surgical intervention, and long-term surveillance of people with aortic disease based on evidence available in the literature and, in some instances, based on expert consensus opinions.
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