What is Walk for Victory?
Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan syndrome, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together. The walks are non-athletic, family-oriented events that focus on fundraising and fun!
Read more about the Foundation’s Walk for Victory on The Marfan Foundation website. Find out where you can participate and how to register.
How does Team LDS work?
The Loeys-Dietz Syndrome Foundation participates in The Marfan Foundation’s Walk for Victory program with individual teams. There are walks throughout the US in your area! Create a Team LDS and all registration and participation fundraising efforts are set aside for LDS programs, education, and research.
WHERE DOES THE MONEY FROM TEAM LOEYS-DIETZ GO?
All money raised through Team Loeys-Dietz will be restricted for the Loeys-Dietz Syndrome Foundation Division.
If you have any questions, please contact victory@marfan.org.
What You Can Do
Join a Walk
Register a Team
Raise Funds from Home
What to Expect
Upcoming Walk for Victory Events
Frequently Asked Questions
What do you do on the official Virtual Walk Day?
This is your day to celebrate, be part of the community, and spread awareness! Virtually gather with friends and family during our Virtual Zoom party. We will have a spirit contest, dance party, scavenger hunt, awards, and more.
How do you join the Virtual Zoom party?
We will send you a link link a few days prior to the event.
Who is The Marfan Foundation?
The Marfan Foundation has the greatest community, the most remarkable medical advisors, a world class Help and Resource Center, funds the most innovative research and provides the most up to date health information in the not for profit sector. All of this is made possible by your support as the Foundation is funded 100% by direct and indirect public support and almost 80 cents of every dollar goes to mission.
Where does the money from Team Loeys-Dietz go?
All money raised through Team Loeys-Dietz will be restricted for the Loeys-Dietz Syndrome Foundation Division.
If you have any questions, please contact victory@marfan.org.
Are You Ready to Walk for Victory?
