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What is LDS? What is Loeys-Dietz Syndrome? Main Characteristics Clinical Diagnosis Genetics and Inheritance Treatment Options Emergency Situations About Us Our Mission Our Purpose Steering Committee Medical Advisory Council Resources Medical Resources Find Care Resources for Medical Professionals Medical Guidelines Emergency Alert Card Newsletters and Reports Our Partners Webinars Mental Health Help Center Sydney Lerman Hospitality Program Research Research and Updates Research Articles Novel Biomarker Research Studies Seeking Participants Funded Research Grants StoriesNews Get Involved Ways to Get Involved Fundraising Conferences Volunteer Shop Events
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Loeys-Dietz Syndrome Frequently Asked Questions

This panel discussion led by Gretchen MacCarrick, MC CGC of Johns Hopkins University, and members of the Loeys-Dietz Syndrome Foundation Board, answers common questions about living with and treating LDS.

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Empowerment Series, Personal PerspectivesGretchen MacCarrickJune 22, 2022
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The Loeys-Dietz Syndrome Foundation is a division of The Marfan Foundation, a qualified 501(c)(3) tax-exempt organization. EIN: 52-1265361

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