Support

There are many ways to get your questions answered and meet others in the community.

The Help and Resource Center

Our Help and Resource Center is staffed by a registered nurse who can help answer your questions Monday through Friday, 9 am to 5 pm Eastern time.

Find a Doctor

The Marfan Foundation has compiled an Institutional Directory, which is a great place to start if you are looking for a doctor knowledgeable about Loeys-Dietz syndrome.

Virtual Support Groups

There are several virtual support groups available which meet regularly through a virtual meeting platform.