This March, we’re celebrating 20 years since Loeys-Dietz Syndrome was first identified! Join us as we raise awareness, share stories, and support those affected. Together, we honor two decades of progress and continue advocating for the LDS community.
The Loeys-Dietz Syndrome Foundation is a division of The Marfan Foundation. Through this relationship, donations to the Loeys-Dietz Syndrome Foundation are tax-deductible and directly support our shared mission.
Loeys-Dietz syndrome (LDS) is a genetic disorder that affects the connective tissue in the body. The disorder was first observed and described by Dr. Bart Loeys and Dr. Hal Dietz at the Johns Hopkins University School of Medicine in 2005. Since then, other groups around the world have described additional genetic causes of Loeys-Dietz syndrome.
By gathering family and friends who want to help make a difference, participating in fundraising events increases support for the Loeys-Dietz Syndrome Foundation, as well as builds awareness about LDS. From bowling to 5K runs to happy hours to jewelry – we have several fundraising opportunities available.
The Tribute Program of the Loeys-Dietz Syndrome Foundation provides a meaningful way to recognize and commemorate the important people and occasions in your life. You can honor a family member or friend, celebrate a special occasion, or remember a loved one. You can create a tribute page, make a donation to support an existing tribute page, or give directly to the LDSF.
The Loeys-Dietz Syndrome Foundation is always looking for more people to get involved and join our community. If you have a request or would like to help the LDSF further our mission, please email info@loeysdietz.org.
We love getting to connect with Loeys-Dietz families and hearing your stories of inspiration and hope. If you would like to share your story, please visit our Stories page and complete the online form. We will then be in touch with you to record your story on video or via transcription.
As the LDSF moves forward to meet the educational and resource needs of its community, we are asking for you to consider financially supporting our mission.
As our amazing Loeys-Dietz Syndrome community grows, it is more important than ever that we have fun together! View our calendar for the latest digital and local events.
