Filtering by: Fundraising

LDS Awareness Month: Day of Giving
Mar
12
12:00 AM00:00

LDS Awareness Month: Day of Giving

March 12 is our annual Loeys-Dietz Day of Giving. Don't miss your chance to fuel the programs you love and support our mission!

81 cents of every dollar you give powers:

  • Support Groups

  • Medically-supervised, fully accessible Camp Victory for Kids & Families

  • Help & Resource Center

  • Webinars, Conferences and Symposia

  • Our website, communications and so much more!

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Heartworks Chicago
Feb
21
6:00 PM18:00

Heartworks Chicago

Join us for a special evening at the Chicago HeartWorks Gala on Friday, February 21, as we come together to support the life-saving mission of The Marfan Foundation and build a brighter future for our loved ones affected by Marfan syndrome, Loeys-Dietz syndrome, VEDS, and related genetic aortic and vascular conditions.

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Heartworks Houston
Nov
22
6:30 PM18:30

Heartworks Houston

You are invited to join us for a special evening at the 4th Annual Houston HeartWorks Gala on Friday, November 22, as we come together to support the life-saving mission of The Marfan Foundation and build a brighter future for our loved ones affected by Marfan syndrome, Loeys-Dietz syndrome, VEDS, and related genetic aortic and vascular conditions.

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UnCorked 2024
Oct
24
6:00 PM18:00

UnCorked 2024

You are invited to join us for a special evening at a tasting event on Thursday, October 24th at 6 PM, as we come together to support the life-saving mission of The Marfan Foundation and build a brighter future for those affected by Marfan syndrome, Loeys-Dietz syndrome, VEDS, and related genetic aortic and vascular conditions.

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2024 LDSF Day of Giving
Jun
12
12:00 AM00:00

2024 LDSF Day of Giving

We’re celebrating our 6th year of raising awareness for Loeys-Dietz syndrome (LDS) by declaring June as Loeys-Dietz awareness month! Keep an eye out for #RealReels on social media (new community stories), updated resources on our website, including a refreshed Emergency Alert card, and join us by showing your commitment on LDS Day of Giving on June 12th!

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2024 Pacific Northwest Walk for Victory
Jun
8
12:00 PM12:00

2024 Pacific Northwest Walk for Victory

  • Robertson Collaborative Life Sciences Building Oregon Health & Science University (map)
  • Google Calendar ICS

Join us on Saturday, June 8 for the 2024 Pacific Northwest Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

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Heartworks NYC
May
21
5:00 PM17:00

Heartworks NYC

Your presence will ignite the sparkle at the iconic Rainbow Room on May 21 when you attend the Marfan Foundation’s signature event, the HeartWorks Gala in Manhattan. You’ll help save and improve the lives of people impacted by genetic aortic and vascular conditions while you enjoy a brilliant evening of cocktails, dinner, and entertainment amid the company of top supporters from across the nation.

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Heartworks St. Louis
Apr
27
7:00 PM19:00

Heartworks St. Louis

Join us for a special evening as we celebrate the 15th Anniversary of the Heartworks Gala St. Louis on Saturday, April 27th, as we come together to support the life-saving mission of The Marfan Foundation and build a brighter future for our loved ones affected by Marfan syndrome, Loeys-Dietz syndrome, VEDS, and related genetic aortic and vascular conditions.

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