Help us spread Loeys-Dietz syndrome awareness all month long!
We’re celebrating our 6th year of raising awareness for Loeys-Dietz syndrome (LDS) by declaring June as Loeys-Dietz awareness month! Raising awareness helps drive research and support for those living with LDS and their loved ones.
Keep an eye out for #RealReels (new community stories) on social media and updated resources on our website, including a refreshed Emergency Alert card. And join us by showing your commitment on LDS Day of Giving on June 12th!
Share Your Story!
We love hearing your stories of courage and sharing them with other community members so they can be encouraged. Our video reels go global and spread so much awareness. Can you help save lives by filming your real -- what you want the world to know about life with LDS? It's easy.
Get Our Community Member-Designed Merch
Congratulations to the adult and child community artwork contest winners, Stephanie Morales and Ariele Damaa. Their unique, creative designs are featured on select LDS Awareness Month merchandise. Purchase yours today!
Share Information With Your Community!
Click on the graphics below to save them and share them with your networks!
Get the Kids Involved!
We've created a special LDS Awareness Month activity booklet just for kids. Download select pages or all 14! From coloring pages to word searches, this booklet provides a variety of fun, positive, and creative ways for kids to express themselves.