Join us as we spread awareness and raise funds to support The Marfan Foundation's mission! Walk for Victory is a community-focused, family-friendly event with lunch, kids activities, and a short, non-competitive walk.
Join us as we spread awareness and raise funds to support The Marfan Foundation's mission! Walk for Victory is a community-focused, family-friendly event with lunch, kids activities, and a short, non-competitive walk.
Join us as we spread awareness and raise funds to support The Marfan Foundation's mission! Walk for Victory is a community-focused, family-friendly event with lunch, kids activities, and a short, non-competitive walk.
Join us on Saturday, June 15 for the 2024 Iowa Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.
Join us on Saturday, May 11 for the 2024 Global Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.
Join us on Saturday, June 15 for the 2024 Philadelphia Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.
Join us on Saturday, June 15 for the 2024 Milwaukee Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.
We’re celebrating our 6th year of raising awareness for Loeys-Dietz syndrome (LDS) by declaring June as Loeys-Dietz awareness month! Keep an eye out for #RealReels on social media (new community stories), updated resources on our website, including a refreshed Emergency Alert card, and join us by showing your commitment on LDS Day of Giving on June 12th!
Join us on Saturday, June 8 for the 2024 Chicago Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.
Join us on Saturday, June 8 for the 2024 Pacific Northwest Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.
Join us on Sunday, June 2 for the 2024 Boston Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.
Join us on Saturday, June 1 for the 2024 NYC Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.
We’re celebrating our 6th year of raising awareness for Loeys-Dietz syndrome (LDS) by declaring June as Loeys-Dietz awareness month! Keep an eye out for #RealReels on social media (new community stories), updated resources on our website, including a refreshed Emergency Alert card, and join us by showing your commitment on LDS Day of Giving on June 12th!
Join us on Sunday, May 19 for the 2024 Denver Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.
Join us on Saturday, May 18 for the 2024 Pittsburgh Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.
Join us on Saturday, May 4 for the 2024 Northern California Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.
Join us on Saturday, May 4 for the 2024 Northern California Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.
Join us on Sunday, April 21 for the 2024 Atlanta Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.
Join us on Saturday, April 20 for the 2024 Raleigh Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.
Join us on Sunday, March 3 for the 2024 Phoenix Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.
Join us on Saturday, March 2 for the 2024 Houston Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.
Join us on Saturday, February 3 for the 2024 Southern California Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.
Join us on Sunday, January 28 for the 2024 South Florida Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together. The walks are non-athletic, family-oriented events that focus on fundraising and fun. Register now!
Join us on Saturday, January 6 for the 2024 Tampa Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together. The walks are non-athletic, family-oriented events that focus on fundraising and fun. Register now!
Join us on Saturday, November 4 for the 2023 Nashville Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together. The walks are non-athletic, family-oriented events that focus on fundraising and fun. Register now!
Join us on Saturday, June 10 for the 2023 Philadelphia Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together. The walks are non-athletic, family-oriented events that focus on fundraising and fun. Register now!
Join us for Loeys-Dietz Awareness Day of Giving on June 13 by donating now or starting a Facebook Fundraiser and inviting your friends and family to join you.
Join us on Sunday, June 11 for the 2023 Chicago Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together. The walks are non-athletic, family-oriented events that focus on fundraising and fun. Register now!
Join us on Saturday, June 10 for the 2023 Pacific Northwest Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together. The walks are non-athletic, family-oriented events that focus on fundraising and fun. Register now!
What is common vs. what is uncommon? What did we know, and what needs to be addressed? Join an interactive discussion on the current guidelines for Loeys-Dietz syndrome types 1-6 with Johns Hopkins’ Dr. Hal Dietz and Gretchen MacCarrick, MS, CGC.
