Filtering by: Awareness Month

LDS Awareness Month: Day of Giving
Mar
12
12:00 AM00:00

LDS Awareness Month: Day of Giving

March 12 is our annual Loeys-Dietz Day of Giving. Don't miss your chance to fuel the programs you love and support our mission!

81 cents of every dollar you give powers:

  • Support Groups

  • Medically-supervised, fully accessible Camp Victory for Kids & Families

  • Help & Resource Center

  • Webinars, Conferences and Symposia

  • Our website, communications and so much more!

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2024 LDSF Day of Giving
Jun
12
12:00 AM00:00

2024 LDSF Day of Giving

We’re celebrating our 6th year of raising awareness for Loeys-Dietz syndrome (LDS) by declaring June as Loeys-Dietz awareness month! Keep an eye out for #RealReels on social media (new community stories), updated resources on our website, including a refreshed Emergency Alert card, and join us by showing your commitment on LDS Day of Giving on June 12th!

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2024 Pacific Northwest Walk for Victory
Jun
8
12:00 PM12:00

2024 Pacific Northwest Walk for Victory

  • Robertson Collaborative Life Sciences Building Oregon Health & Science University (map)
  • Google Calendar ICS

Join us on Saturday, June 8 for the 2024 Pacific Northwest Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

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2024 Loeys-Dietz Syndrome Awareness Month
Jun
1
to Jun 30

2024 Loeys-Dietz Syndrome Awareness Month

We’re celebrating our 6th year of raising awareness for Loeys-Dietz syndrome (LDS) by declaring June as Loeys-Dietz awareness month! Keep an eye out for #RealReels on social media (new community stories), updated resources on our website, including a refreshed Emergency Alert card, and join us by showing your commitment on LDS Day of Giving on June 12th!

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2024 Washington, D.C. Walk for Victory
May
4
12:00 PM12:00

2024 Washington, D.C. Walk for Victory

  • Cabin John Regional Park - Group Picnic Area (map)
  • Google Calendar ICS

Join us on Saturday, May 4 for the 2024 Northern California Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

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2024 Atlanta Walk for Victory
Apr
21
12:00 PM12:00

2024 Atlanta Walk for Victory

  • Chastain Park Ave NW & Dudley LN NW Atlanta, GA United States (map)
  • Google Calendar ICS

Join us on Sunday, April 21 for the 2024 Atlanta Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

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2024 Southern California Walk for Victory
Feb
3
12:00 PM12:00

2024 Southern California Walk for Victory

  • 970 Arlington Drive Costa Mesa, CA, 92626 United States (map)
  • Google Calendar ICS

Join us on Saturday, February 3 for the 2024 Southern California Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

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2024 South Florida Walk for Victory
Jan
28
12:00 PM12:00

2024 South Florida Walk for Victory

  • 1701 North Highland Avenue Tampa, FL, 33602 United States (map)
  • Google Calendar ICS

Join us on Sunday, January 28 for the 2024 South Florida Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together. The walks are non-athletic, family-oriented events that focus on fundraising and fun. Register now!

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2024 Tampa Walk for Victory
Jan
6
1:00 PM13:00

2024 Tampa Walk for Victory

  • 1701 North Highland Avenue Tampa, FL, 33602 United States (map)
  • Google Calendar ICS

Join us on Saturday, January 6 for the 2024 Tampa Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together. The walks are non-athletic, family-oriented events that focus on fundraising and fun. Register now!

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2023 Nashville Walk for Victory
Nov
4
10:00 AM10:00

2023 Nashville Walk for Victory

  • Shelby Park (Riverview Pavilion) (map)
  • Google Calendar ICS

Join us on Saturday, November 4 for the 2023 Nashville Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together. The walks are non-athletic, family-oriented events that focus on fundraising and fun. Register now!

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2023 Philadelphia Walk for Victory
Jun
17
12:00 PM12:00

2023 Philadelphia Walk for Victory

Join us on Saturday, June 10 for the 2023 Philadelphia Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together. The walks are non-athletic, family-oriented events that focus on fundraising and fun. Register now!

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2023 Chicago Walk for Victory
Jun
11
12:00 PM12:00

2023 Chicago Walk for Victory

Join us on Sunday, June 11 for the 2023 Chicago Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together. The walks are non-athletic, family-oriented events that focus on fundraising and fun. Register now!

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