Filtering by: Marfan Camps
Camp Victory for Kids: Georgia 2025
Jul
13
to Jul 18
Connection, Marfan Camps

Camp Victory for Kids: Georgia 2025

Don’t miss out on this opportunity for your child/children, ages 7-16, to attend Camp Victory for Kids. This five-night camp is designed for kids with Marfan, VEDS, Loeys-Dietz, and related syndromes and their siblings to participate in a traditional overnight camp in a safe and accessible setting. Give your kid(s) the gift of friendship, independence, and memories to last a lifetime.

This year, because of our 40th Conference in Atlanta leading up to camp (July 11-13), we will offer a bus for campers from the conference site (Hyatt Regency, Atlanta) to Camp Twin Lakes.

Thanks to the support of our generous donors, including Camp Twin Lakes, registration fees have been significantly discounted. Scholarships are available to cover the registration fee, which includes lodging, meals, and activities. To apply for financial support, click here. Scholarship applications for this camp are due May 19.

Registration Cut-off Date: June 13

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Camp Victory for Kids: California 2025
Jul
27
to Aug 1
Connection, Marfan Camps

Camp Victory for Kids: California 2025

  • Sierra Nevada Journeys (map)
  • Google Calendar ICS

Don’t miss out on this opportunity for your child/children, ages 7-16, to attend Camp Victory for Kids. This five-night camp is designed for kids with Marfan, VEDS, Loeys-Dietz, and related syndromes and their siblings to participate in a traditional overnight camp in a safe and accessible setting. Give your kid(s) the gift of friendship, independence, and memories to last a lifetime.

Due to the California camp's more remote location, with support from Keck Medicine of USC Cardiac and Vascular Institute, transportation will be provided for those who need it, including flights from Southern California and a bus from a central pickup location in Northern California to the camp.

Thanks to the generosity of our generous donors, registration fees have been significantly discounted. Scholarships are available to cover the fee, which includes lodging, meals, and activities. To apply for financial support, please click here.

Scholarship applications for this camp are due June 2.

Registration Cut-off Date: June 27

Thank you to our CA Camp Victory sponsor:

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Camp Victory for Families: Georgia 2025
Sep
19
to Sep 21
Connection, Marfan Camps

Camp Victory for Families: Georgia 2025

Join us for this exciting opportunity to meet other families impacted by Marfan, VEDS, Loeys-Dietz, and related syndromes. Have fun with your entire family, participating in traditional camp activities in a safe, accessible environment. Registration fees have been significantly discounted thanks to the support of our generous donors, including Camp Twin Lakes. Scholarships are available to cover the registration fee, which includes lodging, meals, and activities. To apply for financial support, please click here.

Scholarship applications for this camp are due July 28.

Registration Cut-off Date: August 22

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Camp Victory for Families: California 2025
Oct
24
to Oct 26
Marfan Camps, Connection

Camp Victory for Families: California 2025

Join us for this exciting opportunity to meet other families impacted by Marfan, VEDS, Loeys-Dietz, and related syndromes. Have fun with your entire family, participating in traditional camp activities in a safe, accessible environment.

Registration fees have been significantly discounted thanks to the support of our generous donors, especially Keck Medicine of USC Cardiac and Vascular Institute. Scholarships are available to cover the registration fee, which includes lodging, meals, and activities. To apply for financial support, please click here.

Scholarship applications for this camp are due September 1.

Registration Cut-off Date: September 26

Thank you to our CA Camp Victory sponsor:

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Camp Victory for Families – California
Nov
8
to Nov 10
Connection, Marfan Camps

Camp Victory for Families – California

Like the kids’ camp, Camp Victory for Families offers children and teens with genetic aortic and vascular conditions and their families a chance to enjoy some of the same traditional camp activities, both as a family and with their peers. Families attending the 2-night family camp stay together in accessible bunks and dine and socialize with other families in a distinct area of the camp, offering more opportunities to strengthen bonds and build a sense of community.

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Camp Victory for Families – Georgia
Sep
20
to Sep 22
Connection, Marfan Camps

Camp Victory for Families – Georgia

Camp Victory for Families offers programming for children, teens ages 5 to 18, and their family. It features traditional summer camp activities, such as archery and paddleboats, arts and crafts, mini-golf and swimming, as well as other standard camp activities that are modified so that all can participate. Parents have the opportunity to get involved in activities with their children and participate in professionally-led support groups.

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Camp Victory for Families – Georgia
Oct
13
to Oct 15
Connection, Marfan Camps

Camp Victory for Families – Georgia

Camp Victory for Families offers programming for children, teens ages 5 to 18, and their family. It features traditional summer camp activities, such as archery and paddleboats, arts and crafts, mini-golf and swimming, as well as other standard camp activities that are modified so that all can participate. Parents have the opportunity to get involved in activities with their children and participate in professionally-led support groups.

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Camp Victory for Kids – Portola, California
Jul
30
to Aug 4
Connection, Marfan Camps

Camp Victory for Kids – Portola, California

  • Sierra Nevada Journeys - Grizzly Creek Ranch (map)
  • Google Calendar ICS

Camp Victory for Kids offers children and teens, ages 7 to 18, an opportunity to have an independent camp experience. Children participate in all camp activities, such as lake swimming, boating, archery, arts and crafts, dances, campfires, and much more in a safe environment using only therapeutic and adaptive equipment. When your child shares these experiences with their peers, they create memories which change them forever.

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Camp Victory for Kids – Georgia
Jul
23
to Jul 28
Connection, Marfan Camps

Camp Victory for Kids – Georgia

Camp Victory for Kids offers children and teens, ages 7 to 18, an opportunity to have an independent camp experience. Children participate in all camp activities, such as lake swimming, boating, archery, arts and crafts, dances, campfires, and much more in a safe environment using only therapeutic and adaptive equipment. When your child shares these experiences with their peers, they create memories which change them forever.

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Camp Victory for Families – Portola, California
May
5
to May 7
Connection, Marfan Camps

Camp Victory for Families – Portola, California

  • Sierra Nevada Journeys - Grizzly Creek Ranch (map)
  • Google Calendar ICS

Camp Victory for Families offers programming for children, teens ages 5 to 18, and their family. It features traditional summer camp activities, such as archery and paddleboats, arts and crafts, mini-golf and swimming, as well as other standard camp activities that are modified so that all can participate. Parents have the opportunity to get involved in activities with their children and participate in professionally-led support groups.

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Camp Victory for Families – Ohio
Sep
30
to Oct 2
Connection, Marfan Camps

Camp Victory for Families – Ohio

Camp Victory for Families offers programming for children, teens ages 5 to 18, and their family. It features traditional summer camp activities, such as archery and paddleboats, arts and crafts, mini-golf and swimming, as well as other standard camp activities that are modified so that all can participate. Parents have the opportunity to get involved in activities with their children and participate in professionally-led support groups.

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Camp Victory for Families – Georgia
Sep
23
to Sep 25
Connection, Marfan Camps

Camp Victory for Families – Georgia

Camp Victory for Families offers programming for children, teens ages 5 to 18, and their family. It features traditional summer camp activities, such as archery and paddleboats, arts and crafts, mini-golf and swimming, as well as other standard camp activities that are modified so that all can participate. Parents have the opportunity to get involved in activities with their children and participate in professionally-led support groups.

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Camp Victory for Kids – Ohio
Aug
7
to Aug 12
Connection, Marfan Camps

Camp Victory for Kids – Ohio

Camp Victory for Kids offers children and teens, ages 7 to 18, an opportunity to have an independent camp experience. Children participate in all camp activities, such as lake swimming, boating, archery, arts and crafts, dances, campfires, and much more in a safe environment using only therapeutic and adaptive equipment. When your child shares these experiences with their peers, they create memories which change them forever.

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Camp Victory for Kids – Georgia
Jul
24
to Jul 29
Connection, Marfan Camps

Camp Victory for Kids – Georgia

Camp Victory for Kids offers children and teens, ages 7 to 18, an opportunity to have an independent camp experience. Children participate in all camp activities, such as lake swimming, boating, archery, arts and crafts, dances, campfires, and much more in a safe environment using only therapeutic and adaptive equipment. When your child shares these experiences with their peers, they create memories which change them forever.

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