Due to the recent discovery of the underlying genetic mutations leading to LDS, the spectrum of characteristics and complications is not fully understood.
Read More
What is Loeys-Dietz Syndrome?
Main Characteristics
Clinical Diagnosis
Genetics and Inheritance
Treatment Options
Emergency Situations
Medical Resources
Find Care
Resources for Medical Professionals
Medical Guidelines
Emergency Alert Card
Newsletters and Reports
Our Partners
Webinars
Mental Health
Help Center
Sydney Lerman Hospitality Program